For Dancing Bear, no stent. There’s another appointment in two weeks to see if it really has stopped growing back. We also do not have to shove the tube down her nose to keep the airway open anymore either. Finally, peaceful sleep!
The visit with the Genetics doctor also provided good news. Our son almost certainly does not have Charge Syndrome and being tested for it would be futile. His only issues at this point are the hearing loss, the external shape of the ear, and his overall rate of growth/weight. More than likely, he will grow at a slow rate like his father and his father’s father. There is a chance that it is a hormone issue caused by a skull deformity near his pituitary gland. Even if that is the case, treatment is benign.
So, good news from here. Life is good.
Comments
3 Responses to “Family Update”
Leave a Reply
Good that life is good. Sorry that you’re addicted to LOLCATS.
I’ll keep praying for you and yours.
I know how those test can be and finding out they were unnecessary is a heart ache. I had my son tested for allergies the moment they said he was old enough only to find that he really isn’t allergic to anything. The research failed me he’s one of the few who doesn’t have allergies with what he has. Glad to hear you aren’t having to deal with another test.
Great to hear! (((pink’s family)))