For Dancing Bear, no stent. There’s another appointment in two weeks to see if it really has stopped growing back. We also do not have to shove the tube down her nose to keep the airway open anymore either. Finally, peaceful sleep!

The visit with the Genetics doctor also provided good news. Our son almost certainly does not have Charge Syndrome and being tested for it would be futile. His only issues at this point are the hearing loss, the external shape of the ear, and his overall rate of growth/weight. More than likely, he will grow at a slow rate like his father and his father’s father. There is a chance that it is a hormone issue caused by a skull deformity near his pituitary gland. Even if that is the case, treatment is benign.

So, good news from here. Life is good.