My son had a urology appointment today that we have been treating as more of a formality than anything else. It’s not a formality. Preliminary, and I do mean preliminary, results point to issues of reflux caused by improper drainage of one of his kidneys. This condition is associated with his Goldenhar’s. The effects are

Last night, I took an extended shift with my son. If I fall asleep without the CPAP machine, I get no rest. So, though we were spralled out on the chaise (it’s the thing that looks like half a couch) in a perfect Hallmark moment for three hours, I am not entirely here. What? Oh

I met Doug on the phone earlier tonight. As I was spilling out my great frustration/disappointment/conflicted moment, he wrote me and offered to call. I was happy to accept. I enjoy meeting people and I can be overexcited sometimes, as he soon found out. I told him a couple stories I couldn’t believe I was