Jasper Update

Thanks to all that have wished Jasper well during this scary time. Of course, it’s only scary to us, not to him. He’s fine. He loves to eat, he loves his mom, he makes forceful poops… he’s totally fine. I figure all the right things are in motion for him to say “Hi Mom” when he gets on TV for the first time.

Jasper has a mild form of Goldenhar’s Syndrome. The things we will need to watch for the rest of his childhood include kidney problems, spinal fusing, uneven jaw(though it looks like that will not be a real issue), and possible learning disabilities. So far, the doctors believe that the only real issue for him from the above list is his kidneys.

As a result of Goldenhar’s, he has deformed ears and strange ear canals. All the nerves are there for him to hear, but he failed the hearing test. He may have failed because of his ear canals or the crudity of the test. We’ll find out more about the extent of his hearing loss when he goes to Boy’s Town next week.

Also as a result of Goldenhar’s, a blockage of some kind of tissue grew in his left nostril. He can only breathe from his right side and he cannot come home until that is rectified. Friday morning (tenatively 9:30 CDT), he goes in to have this blockage surgically removed. If the blockage has blood vessels, the operation will take a little longer and he will have a stint for a couple weeks.

Thanks again for the prayers and well-wishes. Thanks for the flowers, they are beautiful. Call if you want, just know that we are at the Hospital all day. My mother-in-law checks all the messages and serves as the go-between.

We are doing pretty well. Sometimes you laugh, sometimes you cry. I write when I can to express what I feel as does my wife. It’s been a rollercoaster, but I can honestly say that I haven’t been angry at God at any point. I feel like He has been good to us.

That’s all the news that’s fit to type. I would have preferred to call, but this is helpful to me as my time is limited these days.